The DPQoL is working to develop a comprehensive fall prevention program for wheelchair and scooter users with Spinal Cord Injury (SCI) and Multiple Sclerosis (MS) using an innovative and interactive mobile application (iROLL-O+ app). The study is sponsored by Craig H. Neilsen Foundation and is performed by researchers at the University of Illinois at Urbana-Champaign.
Previous studies have found that 69% of individuals living with SCI who use wheelchairs and scooters fall at least once in one year period and 75% of individuals with MS experience at least one fall per six months. The program’s aim is to implement an accessible, user-centered, and effective fall education intervention within a mobile environment to decrease fall frequency among individuals who use wheelchairs and scooters living with SCI and MS.
Phase I of the study has been completed, during which we gathered initial feedback from the target population on various aspects of the app, including its usability, usefulness, aesthetics, and accessibility. This initial input has been integrated into the mock-up version of the app.
For Phase II of the study, participants from the target population will use the app to evaluate its usability in-depth. This 9-weeks study would involve:
· Two online assessments, including a set of surveys before and after the education program via the app.
· Orientation session to learn about the program.
· Participation in a 6-week intervention using the mobile app to learn about fall prevention and management + 2 additional weeks using the app on your own.
· Interview to give feedback on the mobile app.
To participate in this study, you should have:
· A diagnosis of SCI or MS
· Age > 18 years old
· Self-reported ability to transfer with moderate or minimal assistance or independently.
· Self-reported inability to ambulate outside of the home for long distances.
· Self-report at least one fall in the past 12 months
· Have access to and are agreeable to working with a care partner during the practice of the physical skills associated with the intervention.
· Have access to a smartphone or tablet.
· Sufficient internet connection to stream online videoconferencing.
If you are interested in participating, please contact us at: dpqol-lab@illinois.edu or 217-333-4650.